My Miracle Kid.

Thomas was too weak to breast feed. I pumped for 6 months.

My son Thomas is my miracle baby.  I have been wanting to blog about him but, have been resistant.  I wasn’t quite sure how I felt about dragging up the past, and I don’t want to come across as a victim of  my past. I will give you the short version.

Thomas was a full term baby. I had no idea of what we were heading into. I had a normal pregnancy, labor and delivery. At birth, Thomas was a bit blue and had a white patch on his eye, but no one seemed too alarmed about his condition. That night in the hospital, I woke up in the middle of the night, to find Thomas’ pediatrician standing over my bed. The Doctor told me that Thomas had a seizure and  he recommended transporting him to Children’s Hospital in Philadelphia.  While I laid in bed shaking, the team from CHOP took Thomas in an ambulance. I discharged myself from the hospital and got things situated for my other son. My husband Dan and I then drove down to the hospital.

Thomas spent the first 13 months of his life at CHOP. He had 11 surgeries during his stay. It was as if he came into the world 3/4 complete and the Doctors had to finish the process.  He came home on a ventilator with a team of nurses set up to help take care of him. Dan and I were also trained how to change his trach, suction him… etc.  It was a life changing year as you can imagine.

Sam has been an amazing brother. He taught Thomas to kink his ventilator hose to make funny noises!

Fast Forward to now. I wanted to write about health and the importance of taking care of yourself and your family.  Thomas is a special needs kid. I want to make sure that his health is optimized as much as I can. I am very concerned about his community. So many of his friends have health issues and are overweight.

Thomas loves pasta , macaroni and cheese, ice cream, chocolate milk.  These are treats for him. He would have spaghetti every day if on his own.

I make a brown rice pasta and give him a serving size along with meat sauce and vegetables. He begins each morning with a smoothie. I will add his probiotic, half of a frozen banana, maybe a few collard greens, and cocoa powder. You can hide a lot in chocolate. He also takes high quality supplements twice a day everyday. He reminds me that he needs his vitamins if I forget. Thomas knows the importance of being hydrated. He tells me when his urine is too dark. “Mom, I need to hydrate.” He goes to bed  basically the same time and gets up everyday at 5:50.

Thomas is an amazing human being. He is really very healthy! I have learned so much from him. He teaches me patience every day.

Thomas Loves a good parade!

Love Your Kids,

Mary

4 thoughts on “My Miracle Kid.

  1. I love your story, thanks for sharing. I had a “special” needs sister. Rita passed away 5 years ago at 59. As I am the youngest of 4 I don’t know much about her beginnings but she lived a fantastic life. Rita was the most independent person I have known, she had friends everywhere she went, she married her perfect match and lived happily all 22 years of her marriage until her passing. Her husband Frank, also “special” is still family. To often our special needs people are left for other people to care for so I applaud you (and me) for understanding what special needs really means. We are the lucky ones.

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